Wednesday, February 16, 2011

Reality bites

I had some tests done today at the hospital. I ended up spending over 3 hrs there this morning for the testing I needed to have done. While it did bite... that isn't the reality I am talking about. As I was waiting for the lab to call my neurologist in peoria about some bloodwork I needed... an older man came in with his family. He was with his son and some lady that referred to him by his first name... Jack. Jack was 70 years old and has liver cancer and a lifetime of smoking has eaten away at 2/3 of his lungs. His cancer is bad. Reminds me of how my family felt when Mr. Wonderful's grandpa got sick. Jack was given 3 months, tops, to live. His family was very sweet and chatty. Jack was quiet and slowly sipping his coffee... looked like he was thinking some big thoughts and just listening to the 2 people that he loves talk to me and discuss things. Just contemplative. You could tell he was thinking about deep things. Life and death, his tests, his family.

About this time the phlabotomist comes out to speak to Jack and his family. She tells Jack that his insurance will not cover 2 of his tests. The total cost he would be responsible for was roughly $700. One of the tests was very important for his doctors in trying to help him be comfortable and possibly receive treatment for his illness. He got a bit angry and irritated and said "I guess I will just go home. I don't have that kind of money." His family convinced him to go through with the testing and promised him they would figure out how to pay for it and he needed to try and not worry about all the details. Then, this is where tears started streaming down my cheeks... I was trying to hide the fact that I was listening but my heart was breaking in a million little pieces listening to this. He looked up at the tech and said "It is just horrible that someone works hard their whole life and when they get old and sick... people just want them to hurry up and die. I just need people to care and make sure I get the help I need". The lady speaking to him was very sympathetic and sweet. But I think everyone in the room was crying. He was telling her hw he worked for 56 years as a truck driver and how he was a good man and paid his taxes and did the right things and now he can't get the care he needs. There were many sad things about it all. The pain in his son's face, the frail, sad voice of a man you can tell has always been strong and capable, and the fear that you could tell the whole family felt about death. Death was just hanging there in the room. Everyone knew it and everyone was terrified and Jack was just... needing some compassion and help. He was needing to feel like the medical community cared about him... Jack... and not about money.

His friend/daughter in law... whatever she is... was telling me that his insurance would only pay for him to be in the hospital for 48 hrs when he got sick and he was not ready to come home when they sent him home over the weekend. But since he has been deemed terminally ill and has a timeline, his insurance doesn't want him IN the hospital racking up the medical expenses even if he needs the 24 hr care for a week to get his strength back. Ugh... it makes me tear up just thinking about the story again. The emotion and fear in his voice was just so evident and I wanted to run up to him and give him a big hug. "I care about you Jack!" I don't know you at all other than what I saw today but I care about you and I want you to have good care. I want you to be able to feel respected and loved in your last days of life... however many may be left. I am sorry that I didn't let you know myself today that it breaks my heart to see you suffering. A big part of me feels horrible about that.

1 comment:

SunnyD said...

I have a good friend with a mom receiving long-term care at a VA hospital. She has lung issues and gets pneumonia -- a lot. And at her age, it's a life or death thing every time she gets it, but the VA is reluctant to send her to the hospital because of the cost.

She feels a lot like Jack does. That she served her country, worked her whole life to raise 4 kids and a husband with heart issues, and now it's as if they're just waiting for her to die rather than giving her what she needs to live.

It is sad.

What's worse is that Jack and loads of others have health insurance -- and they paid a lot of money either over the course of their life for it (medicare) or currently out of their own pocket -- and it doesn't cover everything that is deemed "medically necessary" by the people who are actually providing the medical care.

This is the part that drives me crazy. But at least his insurance that he does have can't dump him any more for being too costly. It's one of the few saving graces of the health insurance bill.